Thursday, November 11, 2010

Happy Halloween.. a little late :)

Some looked scarier than others this year...
here are our HUGE pumpkins.. they maxed out the poor scales at Winco, Hannah fit in the the last one on the left. Ownership from left to right; Micah, Hannah, Cassie, and Emy.
both Trent and I got in and got yucky... Hannah was not interested in touching the stuff inside what so ever! the kids designed the faces for their pumpkins using an app on my ipod.. it was so nice and easy :)
Micah cleaned out all of his pumpkin.. he designed the face and I carved it.
A beautiful princess..
A little devil.. oh and she loved it!
Rosemary from the tinkerbell movie.. she went around telling everyone she was a fairy called "hannah-fairy"
Micah wanted to look scary.. I think he got it!    

Monday, November 8, 2010

results..

I am so Happy to tell everyone.. they were able to retrieve the data off the box!!! Hannah test came back and even with the medication they gave her during the procedure to calm her stomach the results came back mild to moderate reflex associated with registered pain. a small explanation: I had told Hannah about the box and explained what the buttons meant and when I need to push them. through the study Hannah kept pushing the button and I had to repeatedly get after for it. I put a note in the papers that i was recording on that she was doing this and apologized that it may show inconsistencies. It turns out that Hannah knew what she was doing and that when she pushed the button she was refluxing.
This shows that she is feeling it and is in some pain. with all of this and no sign of disease we are choosing to push through and get a referral for a pediatric surgeon to look at her case and see if surgery is a good idea. Hopefully a plan will be in place by the end of the year, we have an appointment as we head out of town just before Christmas to talk to Hannah's GI doctor. If surgery is needed or advised we will aim for the beginning of January before my classes start and after the holidays. Thank you to anyone that has been praying that we can get this data. I was horrified at the thought of putting her through this all again and had come to the conclusion that if they could not get the data I was going to hold off to test again until after cold and flu season, which is a rough time for Hannah regardless.

Tuesday, November 2, 2010

Update with Hannah

Hannah was a trooper through it all and we were able to get the scope and the PH study done. the scope came back that there was visable inflamation in the upper stomach but after taking samples she tested negitive for any diseases.. which I was counting on. The inflamation is thought to be from her throwing up and reflex problems at this point.
I just heard back from the doctor's office on the PH study and I am left frustrated. It appears there was a problem with the hardware that collected the data and they were not able to retrieve it. They have sent the hardware to the manufacture to see if they can retrieve the data. I hope that they can. I am not really feeling willing to do it all over again. while Hannah was off her meds to a month, in preparations for the test she aspiration at least three different times that cause her to get infections in her lungs and it sent her asthma all over the place. I am hopeful that one of two things happen. they are able to retrieve the data and we see what we have been dealing with for years or they decided we do not have to do the test again because she had so many problems off the medication that they are going to use that as proof. At this point I do not feel willing to put Hannah through all of that again... I pray it all works out. I am not a fan of picking on Children, especially when it is my own.
here is a picture of Hannah with the tube in and the box that was attached. she is in a better mood in this pic because she knows we are waiting for someone to come and take it out :)